‘Children are the world’s most valuable resource and its best hope for the future.’ John F. Kennedy
Ali, an 8-year-old CHD Survivor. This is his story. Ali was diagnosed with a complex Congenital Heart Disease (CHD) known as Doubly Committed Subarterial (DCSA) Ventricular Septal Defect (VSD), and that left his parents fearing the worst.
DCSA VSDs are one of the least common types of CHDs. It is located beneath the aortic and pulmonary valves, accounting for about 5-7% of all VSD autopsy findings. They are often complicated by aortic regurgitation resulting from aortic valve herniation into the defect. The main characteristic of this type of VSD is its anatomical proximity to the aortic and pulmonary valves, and the association with progressive aortic valve prolapse, as well as corresponding aortic insufficiency.
Ali’s father is a Garments Broker, and mother a housewife. He solely supports his whole family, which includes 3 children. The planned treatment for his son was expensive, and even though he arranged around 40 percent of the required funds, we had to come to his aid for the rest.
We provide the highest quality of care for children with heart disease, irrespective of their financial means. Each year around 60,000 children are born with CHD in Pakistan, and a large majority of these children are unable to get the treatment required, due to lack of facilities, personnel and the high costs involved. That is where we step in.
We made all arrangements for the extensive procedure as quickly as possible. Ali’s parents were tremendously thankful and were praying for him throughout the process. Blessedly, the extremely brave, young Ali underwent successful heart surgery, and his family can now live the life they always dreamed of.
Our mission is to make sure that not a single child suffering from Congenital Heart Disease (CHD) in Pakistan remains untreated. We continue to strive to achieve this by supporting the heart surgeries of deserving and needful children, along with building Pakistan’s first dedicated Children’s Heart Hospital & Research Institute (CHHRI).
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